MS Liberation treatment - Page 4 - Calgarypuck Forums - The Unofficial Calgary Flames Fan Community

Flames Fan, Ph.D. · 09-30-2010, 10:18 AM

Quote:

Originally Posted by CaptainCrunch

Plus there would be more of a obligation for data collection from a university or learning hospital then there would from a clinic wouldn't there PHD?

Compared to a private clinic, absolutely.

Over here we have a massive registry of patient medical history that is continuously expanded with new data. It's an invaluable resource for data mining to retroactively assess outcomes.

onetwo_threefour · 09-30-2010, 10:50 AM

My mother-in-law has had relapsing-remitting MS for about thirty years and is at the stage in her early 60's where she can barely walk with a cane even when in remission and has poor vision.

She was an RN for many years before the degeneration got too severe to allow her to continue, and her feeling on this, despite having to live with this every day, is that the treatment has not passed a standard that she would be comfortable relying on to consider undergoing the treatment. I tend to agree with her assessment. Without controlled reproduction of results all the anecdotes in the world have to be taken with a grain of salt. We've all seen scientific and medical reporting in mainstream media being flat out wrong on too many issues to grant much credibility to reports filtering through the meduia.

flamesfever · 09-30-2010, 10:52 AM

Nm

flamesfever · 09-30-2010, 11:14 AM

The way I see it, there are 3 areas of funding involved:

1. Funding to conduct the clinical trials, which under the circumstances, I think is the least Governments should do. I believe the Governments of Saskatchewan and Newfoundland, are already on board with this.

2. Funding to set up the procedure to be done, should the clinical trials prove positive. The money for this would probably come from private sources, if our National Health Care System, and the Governments did not get in the way.

3. Funding to have the procedure done, which could be set up in such a way that those who could afford it, would pay for it, and those who couldn't would have it subsidized.

Hemi-Cuda · 10-15-2010, 02:03 AM

so my cousin is down in Mexico right now, just had his treatment done yesterday. he says that he can move his left hand fingers more, has more movement in his ankle, and doesn't drop his shoulder as much when walking. he seems pretty pumped at the results from only 24 hours, i'm looking forward to visiting him in a few months and see the difference

chemgear · 11-19-2010, 10:26 AM

http://www.cbc.ca/health/story/2010/...ca-mostic.html

SeeBass · 11-19-2010, 10:30 AM

^^^An assistant of Dr Zamboni was on CTVnews this morning and said that the procedure this guy got was not even the same as what Dr Zamboni is doing.

I dont know enough but it doesnt sound like we are comapring apples to apples here.

jolinar of malkshor · 11-19-2010, 10:33 AM

Quote:

Originally Posted by Hemi-Cuda

so my cousin is down in Mexico right now, just had his treatment done yesterday. he says that he can move his left hand fingers more, has more movement in his ankle, and doesn't drop his shoulder as much when walking. he seems pretty pumped at the results from only 24 hours, i'm looking forward to visiting him in a few months and see the difference

Any news on your cousin Hemi?

Coys1882 · 11-19-2010, 10:38 AM

Quote:

Originally Posted by jolinar of malkshor

Any news on your cousin Hemi?

Thanks for bumping this - I'm curious too.

kirant · 11-19-2010, 10:38 AM

Quote:

Originally Posted by SeeBass

^^^An assistant of Dr Zamboni was on CTVnews this morning and said that the procedure this guy got was not even the same as what Dr Zamboni is doing.

I dont know enough but it doesnt sound like we are comapring apples to apples here.

The doctor has been on record for saying (several times) that he doesn't endorse the current procedure. I wonder if there is just too much excitement around this discovery and if it needs to be slowed down to judge the side-effects.

Hemi-Cuda · 11-19-2010, 12:22 PM

Quote:

Originally Posted by jolinar of malkshor

Any news on your cousin Hemi?

he's quite happy with the results so far. he has a much easier time walking now, especially with stairs. the bad hand also has a much higher range of motion now, to him it was 10 grand well spent

puckluck · 11-19-2010, 12:25 PM

The guy I know who did this is also very pleased with the results. He said the results were immediate and he could now hold his kids which he couldn't do before.

redforever · 11-19-2010, 01:32 PM

Quote:

Originally Posted by SeeBass

^^^An assistant of Dr Zamboni was on CTVnews this morning and said that the procedure this guy got was not even the same as what Dr Zamboni is doing.

I dont know enough but it doesnt sound like we are comapring apples to apples here.

I believe Dr Zamboni performs the procedure with angioplasty (balloon insertion to clear veins). The person who died had a stent put in, blood clots and complications ensued.

It was not even recommended to this person that he try the procedure. He apparently had a very aggressive form of MS and was not in good health to begin with.

Sadly, people in those conditions are desperate and are willing to try anything and hope for a miracle.

redforever · 11-19-2010, 01:35 PM

By the way, our friend will be going to Mexico at the end of this month or early December. He was to go end of October, but got sick, and had to cancel then.

Once I hear more, I will update what he experienced.

automaton 3 · 11-19-2010, 02:14 PM

EDMONTON — Alberta's health minister says patients who need treatment following controversial out-of-country surgery for multiple sclerosis will get help.

http://www.ctv.ca/CTVNews/TopStories...lberta-101116/

Also, OT but high-dose Vitamin D looks promising, more study required:

http://www.neurology.org/content/74/23/1852.abstract

Ducay · 11-19-2010, 02:21 PM

CBC is all over the guy's death just because it is such a hot topic right now, but it does go to illustrate the risks involved with 3rd world medicine. I wonder if the guy was aware they were doing his procedure via stent instead of angio.....could be an interesting case.

guzzy · 11-19-2010, 03:02 PM

Quote:

Originally Posted by Ducay

CBC is all over the guy's death just because it is such a hot topic right now, but it does go to illustrate the risks involved with 3rd world medicine. I wonder if the guy was aware they were doing his procedure via stent instead of angio.....could be an interesting case.

He knew the risks. He knew he was getting the stent. His life and health was so bad in his opinion, that he took the risk because he knew the potential benefit. THere are people on CBC that were commenting they were in CR with him when he got the operation done. They were talking to him and he said he was willing to risk death to be able to walk or sustain some sort of normalcy.

Coys1882 · 11-19-2010, 03:18 PM

Quote:

Originally Posted by guzzy

He knew the risks. He knew he was getting the stent. His life and health was so bad in his opinion, that he took the risk because he knew the potential benefit. THere are people on CBC that were commenting they were in CR with him when he got the operation done. They were talking to him and he said he was willing to risk death to be able to walk or sustain some sort of normalcy.

I think it's important to say what the stories in the paper are leaving out. This man had been given one month to live - this procedure kept him alive for another six months. This is from the mouth of a co-worker who knew him personally.

chemgear · 12-17-2010, 06:30 AM

http://calgary.ctv.ca/servlet/an/loc...ub=CalgaryHome

The province has announced it will fund a study on the controversial "liberation treatment" - also known as "Zamboni treatment" - to help patients with multiple sclerosis.

flamesfever · 12-17-2010, 11:10 AM

Quote:

Originally Posted by chemgear

http://calgary.ctv.ca/servlet/an/loc...ub=CalgaryHome

The province has announced it will fund a study on the controversial "liberation treatment" - also known as "Zamboni treatment" - to help patients with multiple sclerosis.

I believe this is just a token effort by the Government to appease the MS Community. They are moving at a snails pace by spending only a million dollars, and doing a 3 year observational study of those who have collectively spent many millions of dollars of their own money trying to get help.

I'll bet that the private sector comes up with the funds and initiative to conduct the trials necessary to confirm whether or not CCSVI is a key, conributing factor in MS...long before the Government do.

Then if the results are positive, you can bet the Government will jump all over it to claim credit for the results.