Quote:
Originally Posted by Cecil Terwilliger
It seems a bit of a stretch to have multiple appointments every month. Who has 24-36 doctor, dentist etc appointments a year?
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When my daughter's health first really started going to crap, it wasn't uncommon to have 2-3 specialist appointments a week. That was over & above having to drive in from Strathmore once a week to pick up PICC line supplies at ACH because our hospital would not supply that (we paid out of pocket for all supplies except the actual IV bags of medicine) & there was no delivery available out to us.
It was very difficult. We BEGGED to try & coordinate the appointments for the same days but specialist 1 only had clinic (ie held appointments) on Mondays, & specialist 2 only had clinic on Wednesday & specialist 3 only had clinic on Thursday. On top of all that, I had to be available to deal with her PICC line issues/changes. It's very draining & not at all easy on a family. I took 8 weeks unpaid leave to get her through the PICC line treatment. The docs had her on so many meds she barely knew her own name - she couldn't be left alone.
But, that does slow down eventually & life does return to normal, for a lot of us. But, depending on
their circumstances, it may not slow down, and never mind if you've got more than 1 child with complex medical needs/issues. You have to try & coordinate all that, plus your own medical care/dental care, life balance. It's possible they truly have that many appointments over a year. I eventually chose to quit my job because it was impossible to make it all work, when a couple of years later, we ended up back in the boat of seeing specialists quite often.