Obviously particularly devastating to this family given the familial nature
on the other hand as a single gene form of ALS does theoretically give a mechanism for therapeutic intervention- yes an 'exciting' time for therapy for genetic rare diseases but very early days...which may not be comforting for rapidly progressive disorders such as ALS
former CFLer Michael Soles has been battling ALS for about 15 years now, so protracted disease courses- while not the norm , are not unheard of
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