[calf]

My 1.5 year old has a genetic condition that, under current treatments, is going to require IV needles at least 2-3 times a week for the rest of his life.

The drugs are thankfully covered by health care but are carefully controlled and very expensive (50 to 200k per year from various anecdotes I have seen).

But more importantly, he won't be allowed to take part in a lot of fun activites in order to ensure he doesn't develop any long-term, chronic, and painful issues as he grows up.

I anticipate it will be hard emotionally as well when he has to sit out of certain days of gym class, or he can't take part of some friends birthday parties, etc.

CRISPR has been wildly successful when tested on mice with his condition. I hope it develops fast enough that he can benefit from it too. Mainly so that he can be a normal kid, but man, to avoid all the needles and save the taxpayers some significant coin would be great benefit as well.

Or at least that it is an option if the gene passes to his kids/grandkids in a few decades.

Edit: I should say, he is a normal, healthy kid otherwise. He will be allowed to do a lot of activities and have fun, but with tighter boundaries for safety. We just look like enthusiastic helicopter parents to someone who doesn't know, but have good reason to be.