I recall someone here posting in another thread quite a while back, that this is a diagnosis they have, but don't recall who it was. It's looking like this is a soon-to-be-made diagnosis in our house. I'm wondering if anyone who deals with this might be willing to share their particular experience with AS - feel free to PM me if it's not something you'd like to put in this thread.
Just hoping to get a bit of first hand knowledge so as to give us even the faintest idea of what's to come.