Quote:
Originally Posted by Street Pharmacist
"Bone Thinning" or decreased bone density is a major side effect of prednisone, which I'm guessing your daughter was put on. Reading your story I truly feel for you. Do you have a GP or pharmacist you trust that can look into things and advocate for you?
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Yes, plus a host of other things, at one time or another. There was another med they had her on that also had potential to cause some bone density issues but off the top of my head, I can't recall the name of it - they had her on a ##### ton of meds once Children's got involved.
They did a swab of her foot about a month into the beginning of our 2 year odyssey with this, in the emerg here in S'more. Then they promptly lost it because they couldn't find it anywhere, so we were told. *eyeroll* Children's never did another swab, once they were involved in the process, not even when they went in to irrigate and debride, when they decided she had Osteomyelitis. Up until that point, they had used Clindamyacin, either orally or via IV. We put her on a probiotic that the hospital recommended, in hopes of alleviating some other issues.
So they treated 'blind' so to speak - presumed Staph A and used Piperacillin-Tazobactam to treat - that was the PICC line. Holy hell did she look like that stuff was killing her, instead of making her better.
Then when things hit the fan again that fall, they decided she never did have Osteomyelitis. Several months later, her Rheum finally gets a report that they managed to find the swab (over a year later) - or least find the results and that oh yes, it was a Staph A infection. *more eyerolling* So they went back and forth on whether or not it was Osteo and not Osteo. I tell you, that entire thing was a cluster from start to.....well, I was going to say finish, but this will never be over for her.
Our GP and our local pharmacist have been outstanding, as was her physio. They are really what got us through all this, because it certainly wasn't Children's that did crap all, I can tell you that.