RIP Jonathan. Can't imagine what this courageous kid went through.
Quote:
Jonathan, 17, passed away after a life-long battle with Epidermolysis Bullosa (EB), a rare genetic skin condition.
He spent his entire life in intense pain from EB, yet still managed to carry a positive attitude that will never be forgotten by those his story touched.
Ah geez, that's absolutely tragic. I was hoping he could pull through after I'd heard that his marrow transplant was successful, but there's just so many other serious complications to his condition. What an absolute hero.
What an incredibly courageous boy. I saw a snippet yesterday on TSN and my heart sank for him and his family. May he now rest in peace and be free of all suffering and pain, in a much better place. Makes think of all the petty things I deal with and complain about.